There is a moment in the Oscar-nominated film A Beautiful Mind that
illustrates the basis of an interesting new school of thought. In the movie,
which is based on a true story, John Nash, the brilliant, schizophrenic
mathematician, has recently returned from a mental institution, where
insulin-induced convulsions were used to eradicate his paranoid delusions. He
sits at home, his vitality drained, sapped of the ability to "see" solutions to
complex mathematical formulae -- a gift joined to his schizophrenia. He
absent-mindedly plays with his son's baby toy while his wife makes dinner. He
looks up at her.
"What do people do?" he asks.
It's a profound question. Schizophrenics and manic-depressives report that
life, when their illnesses are untreated, is a kaleidoscope of colors, sounds,
rapid-fire thoughts, boundless energy, dizzying highs, and crushing lows. Not
surprisingly, such neurobiological disorders (the new buzzword for mental
illness) are closely linked to genius and high creativity. They are also linked
to suicide. Some studies indicate that highly creative people are two to three
times more likely to have mood disorders than the general population. When on
medication, they say, the highs and lows are flattened into something that
feels like a beige limbo of sameness, and they lose access to creative
impulses. There are those who argue that such medication may deprive the world
of the next van Gogh, Sylvia Plath, or Alfred, Lord Tennyson.
Welcome to the "cult" of the broken.
The cult argues that every disability offers its own gifts, and therefore
should be accepted as part of the beautiful mosaic that is our society. And I
completely agree.
But when the cult suggests that treating disabilities is somehow wrong, they
lose my support. Let us not romanticize disabilities. Neurobiological disorders
are devastating diseases that can ruin lives. Many creative types have mental
disorders, but only a small minority are highly creative. That illness may also
confer some creativity is a fortunate side effect, but not one that justifies
the havoc an untreated schizophrenic or manic-depressive can wreak on family,
society, and self. Generally, the reasons people choose not to seek drug
treatment have more to do with the drugs' physical side effects than with loss
of creativity. Yet the cult of the broken makes the ludicrous claim that we
should reconsider treating these disorders because of the "harm" that doing so
would bring to the arts.
The cult also opposes cochlear implants for the deaf, which may partially or
completely restore hearing in some people. Success isn't guaranteed with this
new technology, which may also harm a person's ability to use a hearing aid in
the future. But with further development, this device could put an end to many
forms of deafness. You would think that deaf people would be overjoyed by this.
But members of the cult view these advances as an assault on the deaf
community. Many deaf and hearing-disabled people fear that this technology will
reinforce society's view of the deaf as defective or broken, and in need of
being fixed. They fear it will erode the strong cultural bonds the deaf have
developed in response to living in a soundless world.
But people with these and other disabilities are broken. Why are we so
afraid to say that out loud? Has political correctness blinded us to the
reality that if you can't hear or see, or if your legs don't work or your brain
sends you into destructive furies, that a part of your body or mind isn't
working as it should? That's not to say that people with disabilities can't
function successfully. And certainly, they should always be able to decide
whether to take advantage of any corrective technology or medication (unless
people are a danger to themselves or others, in which case the choice should be
made for them). But the cult's argument implies that no one with a disability
-- mental or otherwise -- should ever seek to correct it because to do so
implies that he or she is broken, and broken is a "judgment" word, and no one
should "judge" anyone else, and why do we feel the need for everyone to be
perfect, anyway?
We feel that need because our parts are supposed to work in a certain way --
and when they fail to do so, we call it an illness or disability. One of my
best friends was disabled by cancer. He doesn't want to be part of the disabled
culture, but he doesn't have much choice, and he's glad it's there. The culture
is filled with strong, brave people who are going on with their lives the best
they can. There isn't one of them who would pass up the chance to fix what is
broken . . . not because being disabled diminishes their humanity,
but because frankly -- and my friend is the first to admit this -- being
disabled just plain sucks compared to having two working legs.
My niece has profound hearing loss. Her mother and father would do anything to
prevent her from having to join the culture of the deaf. It's not because being
deaf is "bad." It's not because her parents can't deal with having an
"imperfect" child. It is because she has ears on her head, and they want them
to work the way they're supposed to work. This is not an unreasonable or
selfish desire. But the cult thinks it is.
Fixing broken humans is medicine's mission. The gifts that people with mental
and physical disabilities bring to our society are real, but those gifts should
not stand in the way of, nor be held more sacred than, curing the illness or
reversing the disability. Unfortunately, the cult of the broken doesn't view
curing as a miracle; it views it as an insult.
Kris Frieswick can be reached at krisf1@gte.net.
Issue Date: March 1 - 7, 2002